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It's not going to be easy; I've only run the distance with LLHM 2023 before; I'm determined to complete it and raise as much money as I can for Emily's Star.
If you don't know what Emily's Star is, then let me enlighten you. The charity was set up by a work colleague of Simon's and our friend Katie. It's set up in memory of her daughter Emily. Emily was born with what doctors describe as a condition that is 'incompatible with life' - a preferred term is a life limiting condition - Trisomy 18. Unfortunately the prognosis was not good and Emily was with us, but a short time. The work the charity does is fantastic, please read below about their objectives:
1) To grant wishes to families who have a child or children with any life limiting or life threatening illness & are supported by a Children with Complex needs nursing team within Milton Keynes. We support children from birth until 25 years old. Our wishes are to help families make memories and we carry this out in various ways.
2) To raise awareness of Trisomy 18 also known as Edwards Syndrome, the UK's second most common syndrome. We also wish to increase the use of the wording "life limiting" when a Trisomy 18 diagnosis is given instead of "incompatible with life"
3) To provide neonatal boxes to Milton Keynes neonatal unit, which include items for both mum and premature or underweight babies. These boxes are called "Emily's gift". We also provide Mini Packs to any baby currently in a UK Neonatal unit. These can be ordered on through our website.
Please do give what you can for this great cause! Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
Thanks for taking the time to visit my Justgiving page x