Story
Thanks for taking the time to visit my JustGiving page.
4.5 years ago our gorgeous 5 year old son, Luke, was diagnosed with Acute Lymphoblastic Leukaemia. It felt like our world had ended, but here we are now with a nearly 10 year old who is 15 months off treatment and life is getting back to normal again and I am ready for a challenge! Covid-19 cancelled my original plan of the Jurassic Coast for May 2020 so now I am aiming for the new Coast2Coast Challenge in July 2021.
CLIC Sargent are a charity who have supported us from day one, we have received grants from them - No one considers the cost of Cancer, Rich drove 600 miles in the first 10 days travelling to and from Bristol Children's Hospital, and I had to live on microwave meals for those 10 days, all this adds up and you can't work so have to rely on sick pay. We had the support of a CLIC Sargent Social Worker - Oh the paper work, forms to fill in for disability allowance, carers allowance, charities you can apply to, respite care you can apply for, explaining to work you won't be there for a year, these are all things our social worker helped us with. Meeting up with other families - Air days, baking days, Christmas Parties, Sibling days. Probably the most important for us was the support of CLIC funded community nurses, possibly the 2 most important people in our lives for the past 4 years. Luke's nurses would come to us as much as they possibly could, they were and still are on the end of the phone if we need them. They would visit Luke in school for blood tests so he didn't have to miss too much every 2 weeks and they were there to support him through every lumbar puncture.
These are just the ways that CLIC Sargent have supported us, they also have home from homes, parent and child advisory groups, they campaign to make life easier for parents and children going through the hell that is child hood Cancer, they truly are just amazing.
If you feel like you would like to donate I, and CLIC Sargent, will be eternally grateful!
Anna xxx
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