BJFC Coaches vs BJFC Parents

***Charity Update***

Two of our younger players (brothers) within Burnham Juniors have recently been diagnosed with ALD (Adrenoleukodystrophy).

https://www.alextlc.org

This is a genetic disorder which only affects males. It is diagnosed from between the ages of 4-early teens and is a neurological disorder which affects the child’s functions make them eventually totally dependent and leading to premature death.

The family feel the spotlight being on them may be too emotional but would love to raise awareness and help those who have, and are currently helping them and the boys.

The link attached explains more in detail about the disorder so you can get a sense of what the parents and beautiful boys are going through at this time.

These are two of our own so let’s get behind this wonderful cause and raise as much as we can

💙🤍💙🤍

Alex TLC is a trusted and experienced organisation offering support and information for all those affected by a genetic leukodystrophy. Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity. Your donations make our work possible.