Amanda Osborne
Mandi and Chris run GNR2022 (great north run/half marathon)
Fundraising for The Ectopic Pregnancy Trust
Story
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Ectopic pregnancy is a common, life-threatening condition that is the leading cause of maternal death in the first trimester of early pregnancy. The condition affects 1 in 80 pregnancies in the UK and occurs when an embryo grows outside of the womb. The pregnancy can never be saved. A variety of treatments are available depending on the presenting symptoms and speed of diagnosis.
Each year in the UK nearly 12,000 women have ectopic pregnancies diagnosed (Source: The 2016 MBRRACE Confidential Enquiries into Maternal Deaths and Morbidity 2009-2014). From anecdotal evidence and due to how statistics are recorded, this is thought to be an underestimation. It is believed the number of cases ectopic pregnancy may number more than 30,000 per year in the UK alone..
Sadly, there are on average two deaths per year in the UK and Ireland due to ectopic pregnancy. In the 21st century, no one should die of an ectopic pregnancy.
Depending on individual medical circumstances, several treatments are available. The pregnancy can never be saved.
The Ectopic Pregnancy Trust was established in 1998, founded in memory of Sophie Winters by her parents. Sophie lost her life to a misdiagnosed ectopic pregnancy.
The Ectopic Pregnancy Trust believes that the deaths and trauma associated with ectopic pregnancy should be prevented. We seek to relieve the distress associated with the experience and provide ongoing support through their treatment and beyond.
The Ectopic Pregnancy Trust believes:
- no one should die from an ectopic pregnancy;
- any woman or person capable of conceiving of childbearing age, who is sexually active or undergoing assisted reproductive technology (ART) treatment, having ectopic pregnancy symptoms, should be considered to be pregnant until proven otherwise to maximise the speed of diagnosis;
- anyone diagnosed with an ectopic pregnancy should receive as many treatment options as the stability of their medical condition allows; this includes expectant management, medical treatment with methotrexate, and surgical treatment;
- it should be universally recognised that early diagnosis enables treatment choice, preserves fertility, and enables a person to feel a greater degree of control over their medical condition. This commonly reduces the emotional impact of the ectopic pregnancy;
- it should be universally recognised that the emotional effects of losing a baby far outweigh the physical condition even in the early stages of pregnancy; and
- anyone who has suffered an early pregnancy loss should have access to all of the information and support they need to aid their physical and emotional recovery.
Their Aims
- to provide information and support to all persons affected by ectopic pregnancy and other early pregnancy complications and the healthcare professionals who care for them;
- to advance education and to promote awareness of ectopic pregnancy and other early pregnancy complications among the medical profession and wider public; and
- to support research into ectopic pregnancy and other early pregnancy conditions
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