Alistair Beaton

Raising awareness for #georgiesgenes

Fundraising for Muscular Dystrophy UK
£1,236
raised of £500 target
Donations cannot currently be made to this page
Seven Hills of Edinburgh, 26 June 2016
Georgie's Genes
Campaign by Muscular Dystrophy UK (RCN 205395 (England and Wales) - SC039445 (Scotland))
Thank you for visiting our team fundraising page for our Muscular Dystrophy UK Family Fund: Georgie's Genes.

Story

Thanks for taking the time to visit my JustGiving page.  I am currently raising awareness for Georgies Genes.  Georgie is my 3 year old niece who was diagnosed in 2014 with a very rare form of Muscular Dystrophy  (pictured with me on a family holiday in Lanzarote).

Currently there is no cure of the type of Muscular Dystrophy Georgie has (L-CMD).  It is so rare that there is little knowledge about the disease progression and there are only a handful of children in the UK that have the condition. Currently Georgie walks unaided for short distances but is
unable to climb stairs or get herself from sitting on the floor to standing.
She has regular cardiac and respiratory checks and thankfully, for now, her heart and breathing muscles remain healthy.

With Muscular Dystrophy UK's help, the funds Georgie's Genes raises will be targeted specifically at research and development into L-CMD.  I’d be grateful for any donations to help us find a treatment, if not a cure, for Georgie and all the other children around the world who have received this rare diagnosis.   

On 26 June, I along with Georgie's Dad and close family friends will be taking part in the seven hills of Edinburgh challenge, running around 14 miles in length and with 2200 feet of ascent/descent. The route includes Arthurs Seat, Corstorphine Hill, Craiglockhart Hill, Braid Hill, The Castle Esplanade, Blackford Hill and Calton Hill.

We are doing this with the united aim of raising awareness of this charity which is so important to us and close to our hearts.

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About the campaign

Thank you for visiting our team fundraising page for our Muscular Dystrophy UK Family Fund: Georgie's Genes.

About the charity

Muscular Dystrophy UK

Verified by JustGiving

RCN 205395 (England and Wales) - SC039445 (Scotland)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

Donation summary

Total raised
£1,235.46
+ £186.25 Gift Aid
Online donations
£1,235.46
Offline donations
£0.00

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