Ailsa Gunn

Ailsa Gunn's Great South Run for Rubinstein-Taybi Syndrome Support Group

Fundraising for Rubinstein-Taybi Syndrome Support Group
£530
raised of £500 target
Donations cannot currently be made to this page
The Great South Run, 28 October 2012
We support families affected by RTS to make sure they know they are not alone.

Story

Updated on Nov 8th 2012 at 7:48 AM from the JustGiving API

Thank to everyone who has supported me. I completed the run in 1h 43 mins.

Updated on Oct 24th 2012 at 1:48 PM from the JustGiving API

Thank you for all your donations, It's very much appreciated. Four days to go!!!

Thanks for looking at my Just Giving page that is helping raise funds for Rubinstein-Taybi Syndrome Support Group.

Rubinstein-Taybi Syndrome (RTS) is a specific pattern of physical features and development disabilities, and is the result of a chromosomal abnormality, which occurs very early on in a baby's development in the womb. It is estimated that it occurs in between 1 in 100,000 and 1 in 125,000 births. What causes the chromosomal defect is not known, and there is no known cure.

This is a very rare and unknown condition in respect of public awareness, more information can be found at http://www.rtsuk.org

I'm raising funds for RTS as a friend's son 'Boyd' has been diagnosed with the condition. Boyd was born on the July 16th 2010, he loves music, splashing in water and watching Mickey Mouse Clubhouse. He is very happy, always smiling and laughing as you will see from the pictures. He likes company and lots of cuddles.

So please dig deep and donate now.

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About the charity

We are a small national charity supporting families affected by RTS, a rare chromosome disorder, the main features of which are a learning disability and a high incidence of various physical and behavioural problems. We are entirely dependent on donations and all funds directly benefit families.

Donation summary

Total raised
£530.00
+ £75.00 Gift Aid
Online donations
£300.00
Offline donations
£230.00

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