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Epidermolysis Bullosa (EB) is a rare genetic skin disorder that causes the skin to be so fragile that the slightest friction can cause severe blistering - inside and outside the body. It is present in 1 out of every 50,000 live births in the US. It can occur in every racial and ethnic group, and affects both sexes equally. There is currently no cure, and the research is on-going. Severe forms of EB cause patients to live with constant pain and scarring. The worst forms of EB lead to eventual disfigurement, disability and often early death. There are many patients who are diagnosed with milder forms, which, while they can be extremely difficult to live with, are non-disfiguring and non-lethal

DEBRA is committed to finding a cure for EB and until that day, to supporting and caring for families affected by the awful condition. 

Please if you can, support this walk through a donation. 

Thanks, Aileen