Story
Thanks for visiting my JustGiving page.
in Feb,2023, My dear friends and colleagues joined hands with me to raise awareness and funds in memory of my son Aiden, who unfortunately died from Sudden cardiac arrest.
Aiden, like many of the other babies, was a healthy baby boy, with no reason for us or his pediatrician to doubt that he had ARVC, a rare kind of cardiomyopathy. In ARVC, fatty fibrous tissue replaces normal heart muscle, this interrupts normal electrical signals in the heart and may cause irregular and potentially deadly heart rhythms.
I'm so honored to share that the response to the fundraiser campaign was incredible and we surpassed our initial $2000 goal and, thanks to MonoSol matching the donation, we raised a total of $7,404 (370% of our target).
The love that people have shown to Aiden has moved and humbled me greatly.
A special thanks to Kristin Kostrzewski, Larissa Reyes-Gleu, and Maria Olson for continuing to share our fundraiser to help motivate more people to donate! ❤️ ❤️ ❤️
CCF is dedicated to improving cardiomyopathy diagnosis, treatment, and quality of life. CCF funds research into innovative medicines and offers educational opportunities.
Pediatric cardiomyopathy is a chronic and potentially fatal heart disease that affects how the heart pumps blood throughout the body. Many people are unaware that it is a leading cause of heart transplants and sudden cardiac arrest in children. Cardiomyopathy is a rare and often progressive heart condition in children. Many children go undetected because their symptoms are minimal or nonexistent.
Thank you again for your contribution!
No matter how small the contribution is, the generosity shown is greatly appreciated.
(Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.)