Story
Our son, Austin ( 3 ), has been recently diagnosed in March 2022 with a rare genetic disorder called Duchenne Muscular Dystrophy (DMD) which affects mainly just boys. As with other families, it was a big shock for us and we had never heard of this condition before. When I found out that Action Duchenne charity is an official partner of the London Landmarks Half Marathon 2023, I felt strongly this was a good oportunity for me to raise awareness of Duchenne and also raise some money to support reaseach into DMD. I've never run a half-marathon or any other race, so it will be a bit of a challenge for me but I'm ready to do my best and run for Austin and all the other boys.
Duchenne Muscular Dystrophy is a severe muscle wasting condition. People living with Duchenne typically need to use a powered wheelchair from their early teens. Life expectancy is around 20 - 30 years, and there is no cure. I'm raising money for Action Duchenne, an amazing UK charity which spends 88.7p in every £1 they raise on ground-breaking Duchenne research, world-class support for Duchenne families, and cutting edge science education.
Please donate to help Action Duchenne continue their vital work, with every donation we're a little step closer to the world where lives are no longer limited by Duchenne muscular dystrophy.
Thank you for your support.
Annie Walker ( Austin's mum )