As most of you my son and wee partner in crime Nate was born with Neurofibromatosis type 1.   Known as NF1.

NF1 affects 1 in every 3000 births,  is a progressive condition and currently there is no cure.  It causes non cancerous tumours to grow on the nerves, skin changes and bone deformities.

The symptoms are; 

Headaches, seizures, brain tumours, oversized head, visual impairment, lisch nodules, optic glaucoma, hearing loss, speech impairment, high blood pressure, freckling in the armpits, groin and  breasts.  Scoliosis, early or delayed puberty, café-au-lait patches, neurobibromas, digestive tract issues, delay in walking and talking,  short statue,  severe itching, learning difficulties, 1 in 4 will have ASD and there's an increased chance in ADHD and ADD. 

The worst thing about being a parent of a child of an NF child is the unknown.   None of us know how, if or when it may choose to manifest. 

Last year I found out about Funny Lumps.   I wish I'd known about them earlier.   The support this charity provides has been amazing.   With advice, education and support.  For Nate to be given the chance to interact with other kids just like him has been amazing.  The trustees of this charity are so hard working and truly amazing people.  Karen the founder would beat down the door of any school or health provider to ensure the child is fully supported! 

They have done so much for Nate and I and so many other families.   I HATE running, my knee is totally gammy so I'll be crawling across the finish line.   I'd really appreciate even a few quid to sponsor me to help this charity continue to provide it's fantastic support!