Reverse Rett is a charity very close to my heart, after my adorable cousin Harriet was diagnosed with the disorder. Harriet is the most loveable and precious little girl in the world, and can always be sure to put a smile on your face by her pure presence.
For those that don't already know, Rett syndrome is a neurological condition which most often strikes previously healthy little girls between their first and second birthday and leaves them with multiple disabilities and medical complexities for life.
Most people with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.
Research has shown that girls with Rett do not have brain damage. They know and understand much more than their bodies allow them to show - but they are locked in, trapped by a body that cannot obey signals from their brain.
Whilst there is currently no treatment for Rett Syndrome, there is hope, and together we have every hope for Harriet.
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