Jack was born prematurely at 28 weeks on the 30th October 2020, weighing a tiny 2lb 110z. Jack was very healthy. Everything was going great, Jack was making great progress, there was talks of moving onto another ward and talks of bringing him home in 12 weeks time. Until day 9 of his little life, when he developed NEC and sepsis all within a couple of hours. We had never heard of NEC before so we wasn't fully aware of the deverstating effects it can have. Unfortunately for us our story didn't end very well and sadly 12 hours after diagnosis Jack-Vinnie sadly passed away. 

7% of premature babies catch NEC within the first few days/weeks of life, some in the later months. Most will need emergency life changing operations to the bowel in order to survive. Many have multiple operations, spend months recovering and still the outcome isn't great.

25-50% of babies diagnosed with NEC will sadly pass away.

Please help me bring awareness to this terrible heartbreaking disease that has changed so many lives including mine, help me fight for a world without NEC so that more families are able to bring their babies home!.

NEC UK is a parent led registered charity for Necrotising Enterocolitis, NEC (1181026)Here at NEC UK we also raise vital funds to support:Medical ResearchFamilies affected by NECWe offer phone, email and social media supportArrange yearly family meets,Provide Parent Care packs to families affected by NEC in NICU units across the UKSupport Kangaroo Care by providing Kangaroo hampers to any parent in NICU across the UK.Donate electric breast pumps to NICU across the UKOffer Nappy Support for children who use over the average nappies,Provide 'Bags of Love' for bereaved parents