Lauren Perks

24 hour Danceathon for FND

Fundraising for FND Hope UK
£901
raised
24 hour Danceathon , 24 April 2021
FND Hope UK

Verified by JustGiving

RCN 1173607
We fund awareness, research & education to improve the lives of those with FND.

Story

We are going to dance non-stop for 24 hours to raise money for a disorder that has individually changed both of our lives forever. 

A functional Neurological Disorder (FND) can take over someones life at any time with no triggers or reason to start. Someone with FND has a perfectly healthy brain and a perfectly healthy body but they simply do not work well with each other. 

FND send signals from your brain to your body and there is no way of stopping this from happening. When under investigation of MRI, EEG's, ECG's and much more, FND does not show in any medical way, therefore there is not anything a doctor can see and 'fix'. 

FND can cause people to suffer from many symptoms to include: seizures, paralysis, stroke, incontinence, tremors, migraines and more. 

FND has very little funding, is not well known by a majority of health care and neurological professionals yet is one of the most common reasons why people attend a neuro appointment. 

Lauren and Chloe met in 2018 after searching for other people with FND online. It turned out they both had a passion for dance, happened to live close to each other and are now the bestest of friends! 

DANCERS: We have 5 dance workshops taught by industry professionals within these 24 hours. If you make a donation (every little helps!) and drop me an instagram message (@_laureneloise_) to let me know. You will get a zoom code to access ALL workshops! 

Lauren's Story: 

In 2017 I woke up having a seizure. This was my first ever and I was rushed to hospital. This happened every day for three weeks and I was rushed to hospital each time and they did not know what it was or what to do! 

After 3 weeks I was admitted into the neuro ward. I had SO MANY tests done but nothing was showing as to why this was happening. These seizures increased throughout the years and got to a bad 6-8 A DAY! 

In 2018, still having daily seizures with no answers. I suffered from a stroke, this was again a symptom of my FND. 

In 2019, still having daily seizures I woke up one morning and could not feel my legs. I was paralysed from my waist down and admitted to neurological hospital. I had to learn to walk, run, step and stand all over again battling with daily FND seizures too! I was admitted to the worlds best neurological hospital in London for further help. 

In 2020, still having daily seizures however they reduced FND took over my brain and made me suffer with paralysis for the second time! This time the NHS were not sure what to do so I had to fundraise and with amazing support I got many forms of rehabilitation and I learnt to walk, run, etc all over again! 

In 2021, I am still suffering with daily seizures due to my FND however I am positive, happy and thankful that I am dancing/teaching again and able to help other people just like Chloe through their FND journey. 

Chloe's Story: 

In 2016 my right foot become fixed in a point position - I was emitted to hospital for 4 days having tests which all come back normal. They referred me to royal London hospital. 

In 2017, after a year of my foot being stuck pointed they put it in a stretching cast, to do this they had to sedate me and force my foot into a normal position to put the cast on. I then spent 3 weeks in Great Ormand Street Hospital (GOSH) doing intense physio. Later that year I started having seizures/involuntary movements. 

2018 I was given medication but it didn’t help, It was then I started seeing a psychologist. This also was difficult and my seizures was now lasting as long as hours! Ambulances was called many times as I was in a lot of pain! 

In 2019 -2020 there no real change apart from more symptoms such as dissociating, fatigue and pain.

So 2021 I’m still in pain, I’m still having seizures, but I’m trying new medication, I’m seeing top neurologists but I’m still stuck which is why I need to raise awareness of FND. 

 

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About the charity

FND Hope UK

Verified by JustGiving

RCN 1173607
We are a force for change, uniting the FND community in the pursuit of empowering and improving the health of those with FND. We aspire to drive high-quality standards for FND care throughout the UK. Together, we will search for better treatments and accelerate a cure through scientific research.

Donation summary

Total raised
£900.18
Online donations
£900.18
Offline donations
£0.00

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