Story
Thanks for taking the time to visit my JustGiving page.
In June 2020 my 2 year old son Max who spent a majority of his life suffering with chronic chest and breathing problems was finally diagnosed with a form of PCD (primary ciliary dyskinesia) which is a relatively rare inherited genetic condition. It affects the cilia (microscopic hairs lining the airways). This condition can only be managed with treatment and Without treatment mucus builds up causing infections and irreversible damage to the airways. Max has daily physio therapy, targeted antibiotics 3 times a week and uses a nebuliser once a day.
The money raised for this charity will hopefully provide small grants for things like specialist equipment, supporting research and run events to bring those with PCD together.
The last two years have been a difficult time for us and if through fundraising it means we can give other families support then it would mean so much.Thank you for any donations I appreciate it so much.