Story
Thanks for taking the time to visit my JustGiving page.
This is Phoebe with her Dad Mark, She should be 10 this April but regrettably she will be always 8. In this photo she is enjoying an unforgettable afternoon on the hills in the Trough a Bowland a place of beauty that mirrored her wonderful personality and spirit and the essence of the unconstrained life force that she was. She loved the
outdoors where her radiant sprit could be unleashed and her zest for life, for nature could be let loose. She had a mischievous spirit, loving to prank, an endearing cheekiness with sparkly eyes betraying always her next mirthful moment, desiring always to make people laugh and spread her special cocktail of happiness and joy to others. She had a rare and precious gift. She knew how to love deeply and she was much loved .When she was in the room life was always brighter, sharper (unpredictable ) more real and more enjoyable, filled
with laughter and joy.
3 days after this photo was taken she was diagnosed with a DIPG a
highly aggressive inoperable brain tumour. There was a rapid onset of symptoms in the space of a day with no prior warning. Phoebe passed away on 23rd November a mere 3 months after diagnosis. There is no cure. The disease is brutal, super aggressive with the cancer wrapping around the healthy brain stem, restricting movement, speech, sight, and the ability to swallow and eventually breath. It is truly horrific. What makes it even more shocking is that treatment protocols have not changed in 60 years. The Astronaut Neil Armstrong's daughter Karen received the same diagnosis as Phoebe in 1962. They were offered the same treatment as Phoebe - Radiation. It would provide a few months at most of improved symptoms but Mark and family
were told to go home and make memories. In this day and age this cannot be right. Every 9 days another family in the UK is destroyed by this diagnosis and the absence of hope.
In 2019 I was so moved by Phoebe’s plight I committed to Mark to
run the double Yorkshire 3 peaks. As Covid stuck, and Phoebe’s
fundraising was put hold I realised something more could be done.
Therefore this year i'm committed to:
1) Run the Bob Graham at the end of May. A fell running challenge in the Lake District which involves traversing 42 fells (including all the hills over 3000ft in England) a distance of 66m with almost 27,000ft of ascent in 24hours.
2) Run the Double Yorkshire 3 peaks in July (date tbc). A distance of c48m and 10,000ft in less than 12 hours
3) Run at least 2021 miles (as at June i'm on 1145miles which is 198 ahead of plan. I've also clocked 275k ft of climb so far - which is about 9.5 Everests!)