#161MilesForJacob
David Lote is raising money for UNIQUE (Rare Chromosome Disorder Support Group)
Story
Jacob is 3 years old and is the most loving boy you can ever meet, he was diagnosed with an incredibly rare disease which falls under the KAT6B gene, the SBBYS syndrome is one of the syndromes that is under the KAT6B umbrella. It can cause under active thyroid, intellectual disability, hypotonia, heart and kidney anomalies and problems with sight and hearing.
My aim, along with family and friends is to run 161 miles in the month of July in support of him and the charity, this is the distance from his home to Unique's HQ.
Please donate generously where you can :) Thanks for your support.
