Story
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Harry is the son of a friend of mine and is an adorable 6 year old who is into everything all 6 year old boys are into.
Tragically just after his 5th birthday he was diagnosed with Duchenne Muscular Dystrophy so they know that by his 10th birthday it is likely that he will be in a wheelchair and his upper body will begin to shut down due to this rare and painful condition leaving him locked inside his own body.
As a muscular degenerative disease eventually his heart and lungs will fail almost certainly before he is 30.
The most difficult part is that there is no cure, it will happen and it is 100% fatal.
There is a large amount of research currently taking place in the UK and abroad but as yet the only treatment is a steroid program to help manage the disease.
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