About Cystinosis Foundation UK
Provide support to anyone diagnosed with cystinosis, as well their families and friends
Highlight the disorder to the medical profession and the wider community
Support research into the treatment of cystinosis
Work with other organisations to understand more about metabolic disorders
www.cystinosis.org.uk
advice@cystinosis.org.uk
Cystinosis Foundation UK Registered charity number 1074885