I've raised £100000 to Support Research Into LCA RDH12 To Help Children See The World For Longer

Organised by Through Vicky's Eyes
£56,222
raised of £100,000 target by
Donations cannot currently be made to this page
Children and youth

Story

We are now Eyes on the Future. We have an official charity page. Search for Eyes on the Future or go to www.justgiving.com/eyesonthefuture

Thank you so much for your support !

__________________

We are raising £100,000 to support research into LCA RDH12 to help children see the world for longer.

LCA is a rare inherited retinal dystrophy characterised by severe loss of vision from birth. It's the primary cause of blindness in children. It affects 1 in 80,000 people and it is the most common cause of sight loss in children. More than 25 forms of LCA exist, caused by different genes.

Vicky’s one is related to gene mutation RDH12.

Those with LCA will typically go completely blind in their late teens or early twenties. Today a treatment exists only for 1 form of LCA. A lot is needed to make it accessible to patients affected by other LCA genes including Vicky's one.

Research is a concrete hope for us.

In 2018 the first Gene Therapy was approved in the USA and Europe a similar form of LCA (gene RP65). But a lot of work is needed to make this and other possible treatments accessible to Vicky and kids like her.

We are committed to do everything we can to help to find a cure for us and for generations to come. No child deserves a future in the dark.

Through Vicky's Eyes has invested so far over £515,000 to advance research on RDH12 LCA and there are now 2 companies planning a clinical trial for this specific gene in the next couple of years.

Follow us on Facebook page and on Instagram.

With all our love and gratitude,

Through Vicky's Eyes

Help Through Vicky's Eyes

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on:

About fundraiser

Through Vicky's Eyes
Organiser

Donation summary

Total
£56,221.54