In January 2024 our beautiful 17 year old daughter was diagnosed with Desmoplastic Small Round Cell Tumour - a rare and aggressive sarcoma that affects just 12 people in the UK per year.

It has a 5 year survival rate of just 15%.

Liz died in the early hours of this morning, just 10 months after her diagnosis.

DSRCT has no dedicated organisation fighting for funding and no recognised treatment protocol. Funding information when Liz was first diagnosed was like hunting for a needle in a haystack. We hope that this page will help to change this, enabling families like ours to have access to kinder treatments and better outcomes.

Liz had the best medical team we could ever have hoped for, but to change the outcome more research is needed. We hope that funds raised will raise awareness and help fund research into discreet treatments for DSRCT in the UK.

15% is too small a number. Together we can change that. Liz’s bucket list had a village that came along to try to try to help her achieve it. Let’s make this the final item and do her proud.

(N.B. Added to the above target is an additionl £4,200 which has been donted to Liz’s own GoFundMe in the last 24 hours)