This page is set up with our son TJ
19,who has a Rare muscle waisting condition Duchenne muscular dystrophy, Diagnosed at 3 Tj steadily got weaker, but over the last 2 years its been more rapid, he's lost about 90% ability to move, his heart function is 21% boys with DMD are usually taken by cardiac arrest, or it could start from a simple infection, Tj has little strength in his hands but still gets about in his electric chair,
Tj attends eccles 6th form college a couple of days a week, most people see the happy Tj, not the boy who's in constant pain.
Life expectancy is late teens to early 20s but it differs as one friend died at 14 and another at 19, its hard saying goodnight to your child not knowing if youll get to say good morning.
I cant explain the sort of young man he is and how we've grieved each day since he was diagnosed but we don't want his story to be a sad one, he wants adventure and that's why we are asking for help with a bucket list of wishes that are realistic to his condition, I've rewriting this story to tell who Tj is to us,
We've contacted limitless cruises who specialise in disabled holidays around Europe from hoists to health insurance from £3000for Tj for 8 days ,
We've raised enough to go London over night and do the Harry Potter World, the London Eye jack the ripper tour.
Next is a music concert with his sisters
He adores his 2 young nieces and love making memories with them.
Tjs car mad and would love anything to do with cars and would love to go to a formula1 but again it costs the world (UPDATE TO COME )
it's our job to provide for him but it's unrealistic we have tried and will continue, he's already raised over £2000 towards his list with help from kind people from the nextdoor group and Facebook and that's amazing considering people themselves are struggling, why should you donate your money to someone you dont know with an illness you've probably never heard of ,I don't know but I hope you continue to support Tj THANKYOU