Im Susan Hoyle, 41, a chartered physiotherapist in desperate need of help to try raising at least £10,000 to fund a year's potentially lifesaving medical treatment. I have a rare disease Pansclerotic Scleroderma & it has had a catastrophic effect on my body causing multiple problems & fibrosis to grow in my body destroying the joints/muscles, damaging nerves/blood vessels & causing severe deformity/stiffening & severe pain as it progresses. I have already lost almost all the movement in my right knee, approx 60% of movement in my left knee &,caused major functional problems in my left arm/hand & stiffening/loss of movement in my hips/pelvis/back. The fibrosis at/in my pelvis & I am losing the ability to stand up straight, walk safely with my crutches & use my wheelchair. I do everything I can to help myself & stay as independent as possibIe but without a chance at new treatment Im at risk of the disease becoming systemic & damaging my major organs. If the progression of the disease continues at its current rate I may only have a few years before I lose everything. My fantastic medical teams in London & Cornwall have exhausted mainstream NHS treatments but have been unable to control the disease progression & without new treatment my life is at risk. But my illness IS TREATABLE. there is one last treatment drug ABATACEPT recommended by my medical experts and known to help this type of condition which in my case has the potential to halt the disease progression & improve my current mobility & independence and reduce the amount of pain I am in everyday. The drug is approved in the UK for another condition so you would think that it would be assessable to me when recommended by my expert medical team. Since June 2017 my doctors, MP & I have been battling NHS England but have been denied funding There is an urgency in getting this drug started as im deteriorating rapidly, Im not a lost cause, have life in me & want a chance to live that life to the fullest.