St Patrick's Masonic (Carrickfergus) Lodge 43 is holding a series of fundraising events to raise money for Noah and Gracie Coates.

At 2 and a half years old Noah was diagnosed with Vanishing White
Matter Disease, a form of Leukodsytrophy, which is a life-limiting condition. Vanishing White Matter is a very rare condition which
affects the white matter on the brain. It is genetic and runs in the
family, and both his parents were carriers of the mutated gene.

Symptoms generally appear in a child who has been appearing to
develop fairly normal. The condition means that Noah will lose each
of his abilities and will become physically disabled. A striking feature
of the disease is that the symptoms get worse slowly for the most
part, but there are episodes of rapid deterioration that follows an
infection or mild head trauma. Noah could partially recover following
these episodes, or the episode could lead to coma and death.
Noah’s little sister, Gracie, was also diagnosed with the same
disease.

They are the only two children living in Northern Ireland with
Vanishing White Matter Disease so they have to travel at times for
treatment in Holland.

You can learn earn more of Noah and Gracie’s story at www.noahandgraciecoates.com

A fundraising Dinner Dance will be held in the Masonic Centre,
Carrickfergus on Friday 9th June 2017. It will begin with a three
course meal followed by live band entertainment by a young group
A.L.S., music 70’s to present.

Dinner 7.45 for 8.00pm and tickets are £20.00 per head or come

along after 9.00pm for the Dance, only £5.00 per head.

Contact:- 07817203585 or 07773566803