Steve Ricketts is crowdfunding
Weʼre raising £1,000 to fund research to find a cure for Superficial Siderosis!
- 4 days to go
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Story
My name is Steve. I suffered a subarachnoid haemorrhage in December 2021 and whilst battling with that recovery I was diagnosed with the ultra-rare neuro degenerative disease Superficial Siderosis in May 2022.
Superficial Siderosis is so rare that there are only around 100 people in the UK and maybe 500 worldwide diagnosed with it. Unfortunately, there is no cure at the moment, and only one drug, Deferiprone, that has shown any success in slowing down the progression.
I will be running/jogging/walking the Adidas Manchester Marathon on the 14th April 2024 to raise awareness and funds for research into this condition, to help make the lives of everyone with it more manageable, and hopefully to find a cure.
Thank you so much for taking the time to read my story, any donation will make the world of difference, no matter how small.
There is only one charity in the UK for Superficial Siderosis - The Silent Bleed - so all the money I raise is going to them. Their link is below: -
https://www.thesilentbleed.co.uk
Follow my journey to the start line on Instagram: -
https://www.instagram.com/steve_ricketts_runs
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Steve Ricketts started crowdfunding
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Supporters
136
Bev Seabright
Apr 29, 2024
Well done!
£5.00
Alistair Puddick
Apr 28, 2024
Well done Steve
£20.00
Graham Aldred Limited
Apr 28, 2024
Well done Steve every penny counts
£300.00
Phil King
Apr 27, 2024
Well Done Steve (and Kevin sends his best also)
£150.00
Pw fire protection
Apr 26, 2024
£30.00
Wayne Perrin
Apr 25, 2024
Good luck Steve 👍
£10.00
Irene and Jim
Apr 22, 2024
A day that will forever remain in our hearts - Steve, you were AMAZING!!! Our total respect that you took on and met this challenge - we felt privileged to be with Lauren, Elle & Sammy. 💪💪💪🥰🥰🥰
£262.00
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What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
About the fundraiser
Steve Ricketts
My name is Steve and I'm 46 years old. In December 2021 i suffered a subarachnoid haemorrhage, 6 months later I was diagnosed with an ultra-rare brain disease called Superficial Siderosis. There is currently no cure. I have a wife and 2 kids, and i love running and playing golf!