My name is Sophie Reid and i was born on 10.06.2015. My mummy's waters broke at

just 31 weeks, and a week later ( 8 weeks early ) I arrived into the world. I did not scream or cry and the room was silent as doctors worked on me so i could breath. Seconds felt like hours as i was taken to another area and not even being able to see my mum for the first time. Most parents dream of that moment their baby is born when they are place on their chest and feel their babies warm breath but it wasn't like that was hours before i first felt my mums touch and what felt like days before she could hold me for the first time.

I had to learn everything from the start i had to learn how to swallow, suck and breath, and how to hold my own body temperature. Everything started to go well and after a month i was finally allowed home to be with my mum dad & brothers.

I really struggled to feed and milk would pour from mouth, i wouldn't cry and i slept all day and night so my mum took me to the doctors. I was then quickly admitted back in to hospital as i had lost a lot of weight and wasn't well. The hospital was very busy and some children was sicker than me so the next day i went home. A

few weeks later my breathing became slow i was sucking in at the ribs and struggling for breath. My Mummy & Daddy was worried so I was taken back to the doctors, where an ambulance was called for me. I was quickly taken in admitted to hospital and i needed an oxygen box and drips. i had x rays and they found that my left lung had collapsed. I also tested positive for rsv and needed suction because i couldn't breath .

This is all i have know since very young,feeding tubes, tests doctors & pain.

I have been admitted lots of times, because of struggling to breath and losing weight. But one day i finally gave up and i just refused to eat, it was all to much and back to hospital i went. Hospital was all i knew as I had spent so much time there. Then next time my Mummy and Daddy was worried about me because i was unwell the doctors were rushing around me taking my bloods and forcing glucose into me to try and wake me up, this was the day my ng tube become apart of me. Since that day i have always had my feeding tube in no matter how many times i pull it out. When i was sent home with my NG tube and feeds for the first time my mum & dad had been trained how to hold me down against my will and force a tube up my nose ,down the back of my throat and in to my tummy , this has been very traumatic for all of us. The doctors assumed my swallow was unsafe and my mum and dad wasn't sure, but all the signs pointed towards it.

My mum & dad had brought me a ball pool, i remember one of the last times i played in it my body froze, i couldn't move, Mummy saw my face drop, and time stood still, Mummy and Daddy panicked and called my nurse, who told them to take me to hospital. Once I was there the doctor thought i had, had a stroke. They talked around me looking down at me about putting me to sleep they wanted to see what happened inside my brain. The next day the doctors done hand overs, then ward rounds and they came to see my mum, they wouldn't listen to her and sent me home telling Mummy to see our GP.

Mummy wasn't happy with this so she took me to another hospital further away who told us we wasn't in their area to use the a&e, but as it wasn't an emergency they wouldn't help. My nurse wasn't happy so she booked me an out patient MRI.

before this could happened i was admitted for another reason, i was still constantly sleeping and the doctors wanted to check my blood sugars. This is where i become accustomed to my blood sugar being taken and it was here i had my first ever recorded low blood sugar. I had lots of tests done, blood was taken from me and it took over a week to wean me off the drip I was on, without having a low blood sugar drop. Once i was better i did get my much need MRI though.

I don't remember much from my MRI other than i was sedated twice in one day first for my MRI then for an EEG which is where they wanted to see my brain waves whilst i was sleeping, as they though i was having seizures too. I was very lucky that my MRI came back normal and my EEG had picked nothing abnormal up. The doctors put my seizures down to my blood sugars dropping way too low and causing me to become extremely ill.

Finally after a year of pushing my swallow was tested and came clear just in time for Christmas, but everything i ate was vomited back up, i just couldn't digest any normal foods and it made my pains worse, so i stopped eating again. It was also unsafe at the time with my blood sugars being so fragile.

MY Mummy and daddy got my test results back and they sadly found i wasn't making enough growth hormone and i need to start injections to help me grow and gain weight. They are horrible ice cold being injected in to my tiny little body. I am a very sick little girl and i don't understand much about my life. Pain is very much a part of my eve

every day life. I can bend beyond normal because of my hypermobilty, and i also have pain and swelling in my knees so i cant walk far without it hurting. I get angry, scared ,frustrated and sad. I am Like most 2 year olds, but i do need feeding every 4 hours for up too an hour at a time, i cant play like children my age or go to nursery. I also wake alot during the night and i rip out my feeding tube either because its annoying, painful or because I get angry. I now have a special cot and a pushchair that my supporters have kindly raised money for and this does make my life a little more comfortable. My Mummy & Daddy have to regularly test my blood sugars day and night and this does wake me up and make me cry and scream . It takes me quite along time to go back to sleep once this happens.

I havent got a proper diagnosis at the moment, nobody seems to know what my future holds or what will happen as i grow older. Will ever talk properly? or live a normal life? Will I always have problems eating? Will I always have pain and swelling in my knees or other parts of my body? What is causing all these problems? Is it just one illness/disease or multiple ones? at the moment what ever is wrong with me, seems to be progressing and i really do need help to find a diagnosis and treatment to stop my daily pain. Please could you help me to bring some awareness by sharing my group? Or help in any way so I can get any medical equipment or treatment that I may need that isn't avaliable on the nhs. Please join in with any auctions or raffles, buy some merchandise from my shop or please donate to my just giving

Or my paypal account.

I also have a baby brother who Is 9 months old called Adam.. Adam is like me he doesn't yet have a diagnosis and suffers with extreme food allergies and skin flares that are really very red, itchy and sore, Adam too is not gaining weight and is currently in and out of hospital for treatment.

Thankyou so much for reading mine and my brothers story and for all the fun support we have recieved so far ♡

#SophieandAdamstory