Sophie was diagnosed with Rett syndrome in February 2017. As Sophie's parents Mark and I were devastated by the diagnosis. We were told she is likely to never walk, she is likely to loose the use of her hands, and never speak a word to us.....ever. There is currently no cure for Rett Syndrome. What ever skills she has she is likely to regress and loose those for life too. Professionals class it as a 'locked in syndrome'. Her brain is trying to say and do tasks but the connections get confused or just won't work. I can't imagine how she feels watching children run and play, while she sits and tries her hardest to join in. Day to day life would be 1000 times easier if we could have a solid way of communicating. So We know what she wants to do or how she feels etc. That's where eye gaze comes in. She can communicate to us through an eye gaze computer. What she might like to eat or drink, or maybe even if she would like to watch TV or have a cuddle. If she's upset or frustrated, she can tell us why. I may even hear her call me mummy for the first time. Something I've longed to hear. This computer system isn't cheap (tobii dynavox), with the specialist eye gaze equipment and software... Just over £11,000.00 to give Sophie a voice. We ask you to donate anything you can to help us build up the funds for her. We shall be doing various fundraisers too so watch this space for those. Thank you for taking the time to read this and a massive thank you for donating what you can. Liz, Mark and Sophie x