Macie‘s Story

Mesothelioma Diagnosis

Tracey, Macie’s mum had first started to notice that Macie’s stomach was swelling in March 2018 and knew something wasn’t right. At first, we thought that there maybe a gluten or dairy intolerance, but Tracey pursued to see a Doctor for Macie who was starting to find the swelling very uncomfortable.

Macie’s Doctor sent her for an ultrasound and an MRI scan the following week at Royal Devon and Exeter hospital and she was then transferred to Bristol’s Royal Infirmary Children’s hospital to have a drain put into her stomach and a Hickman line through her neck. After a short wait Macie finally had her diagnosis, in April 2018, an extremely rare form of cancer in children, Mesothelioma.

Macie’s Journey

Macie has had 4 rounds of chemotherapy since her diagnosis, however the chemotherapy was not working so her consultant decided to stop the course. Macie’s consultant was exploring other options that are available to her, surgery being the main one, but in August 2018 Macie had a laparoscopy to find out that surgery was not an option.

We are not sure what will happen from here but Macie is such a strong, beautiful young lady. She is continuing to make everyone laugh and smile like she usually would. She has already been through enough and is taking the whole situation in her stride, a true inspiration to all.

Holiday, Family and School

Tracey managed to get Macie away to Ladram Bay for a week of relaxation in a caravan, despite having to have her stomach drained each day, she doesn’t let it get to her and still manages to crack a smile!

Macie lives with her twin sister, Madison, 14, her elder sister, Saskia, 17, her mum, Tracey and dad, Nellie. Macie has such a close-knit family and she has so much support and love from everyone around her. Macie can’t wait to get back to school and spend time with her friends.

Macie loves dancing, listening to music, playing the XBOX / PlayStation 4 and watching Netflix.