As long as children have had genes and neurological problems, some of them have had Mitchell Syndrome. However, the disease is so rare that it went unidentified for all of human history. It also presents differently in different people, making it hard to categorize. And it’s only with genetic sequencing—a recent development—that researchers have identified the genetic cause of this illness. As of June 2022, we are aware of 15 people—children, teenagers, and adults—who have been diagnosed.

Also, remember the unknown number of Mitchell Syndrome people out there, children and adults, all around the world, who still need help. We are committed to raising awareness of this very rare syndrome.

You can find out more about Mitchell Syndrome by visiting The Mitchell and Friends Foundation https://www.mitchellandfriends.org/ or our website shedfieldlodge.com

Our team are more than just work colleagues, we are a family. And as most families do, when one member is finding life difficult or having a tough time, we all pull together and support each other. We are passionate about helping Laura and Steve and their daughters, Poppy & Pearl

We have already held a fund raising event to help raise valuable funds to help Henry's family after his passing and we are going to hold our Summer Fete this year in memory of Henry and to help us raise enough money to send Laura, Steve, Pearl and Poppy to Disney World in Florida to fulfil Henry's dream.