Background

Four-year old Shea, is my Granddaughter, and she is an incredible little girl. Shea was diagnosed with GATAD2B-associated neurodevelopmental disorder (GAND) in 2022, which is characterised by intellectual disability, decreased muscle tone, and speech disorder. Along with my daughter and her husband, we created a Charity 'GAND AID', to learn more about this rare disorder affecting around 400 people worldwide.

Our mission is to raise awareness, support individuals and families, collaborate on medical research projects to then hopefully find the best possible treatments available for the patients - at present there is NO cure or treatment opportunities for GAND, we want to change that!

Event

THE EVENT IS NOW CLOSED. MANY THANKS TO ALL THOSE CONTRIBUTING, DONATING AND SUPPORTING THE EVENT.

There is NO specialist Doctor in Europe, so through fundraising it will help to support and educate families and patients suffering with GAND and to use funding to both raise awareness and work towards providing research and treatment opportunities. Your Donation will make a difference.

For more information visit: https://www.gandaiduk.org/