We have done it - team Gray and extended family and friends have walked a grand total of 5033.42 miles. thank you all the bed is now a reality x

Sean is also going to join in the milesHi, Sean is 14 and was diagnosed with Angelman Syndrome when he was 2 years old. Part of the fun of Angelman Syndrome is being an insomniac and also a great escape artist with no awareness of danger.

Currently the bed that Sean uses is no longer adequate for his needs. We are looking to raise £5000.00 to buy Sean a safe enclosed UrZone bed which he has had a trial of and loved. The great thing about this bed is that it would be transportable allowing Sean to sleep safely when not at home - something that currently poses a huge risk.

Our aim as a family and with the support of our friends, family and wider community is to walk 5000 miles while raising the money needed.

One of Sean’s favourite songs is 500 miles by the Procalaimers so we have decided to take it further and walk 5000.