SOS - Save Our Stan!

On 7th March 2019 we were given the devastating news that our beautiful son, Stanley, had leukaemia, he was just 16 months old. We were taken by emergency ambulance to Newcastle RVI. After further tests we were told he had T-CELL Acute Lymphoblastic Leukaemia. We were told he was so poorly they didn't know if he would survive the weekend. He had a chest tumour also and couldn’t be put to sleep to have a central line inserted so they had to insert a triple groin line while he was awake as he urgently needed to start his chemotherapy. He was in intensive care for a couple of days and then transferred back to the ward.

He seemed to be doing well but every time we had a bone marrow aspirate the results weren’t what we wanted to hear; his leukaemia was proving hard to get control of; no signs of remission. After lots of different chemo therapies we got to where we wanted to be and on the 9th August 2019 we had our first transplant.

On 2nd October, while we were still on the bubble unit, we were given the heartbreaking news that Stan had relapsed. The palliative care team were brought to meet us and we were told to take him home and make memories. The worst news any parent could ever hear. This was the worst weekend of our lives , desperate in our situation to find some hope for our son, and our 3 year old daughter, Delilah's, little brother.

Thankfully, our wonderful consultant, contacted us to say a company had agreed to give Stan a trial drug, a glimmer of hope in the darkest of days. Amazingly, this drug appeared to get his leukaemia under control which made him eligible for a second transplant. This went ahead on 20th December 2019. Following the transplant he had a really bad reaction (GVHD), other than this, things were looking good, and, our prayers were answered, we got to go home on 7th February to be a family of four again.

Everything seemed to be going great, but on 8th of June 2020 we were given the devastating news the leukaemia had returned. We'd always worried about relapse but this still came as a massive blow as Stanley had been so well, enjoying being home and playing with his big sister Delilah. We have been told there is no other treatment here in the UK and our only hope is getting Stan to Singapore for treatment. However, the cost of this is way way beyond our limits, a minimum of £500,000.00 is needed up front before they will accept Stan for the life saving treatment he needs. This is why we need your help as we are desperate to save our little boy.

Stanley has been so strong throughout everything, this is his only chance and we have to try to SAVE OUR SON. Please support us in trying to raise these funds as quickly as possible. If we managed to raise more than we need any other monies would go to fund research or to help other families that need to explore other treatment options for their poorly children. SOS - Save Our Stan!

Georgia, Lee, Delilah and Stan

xxxx