cooper provan was born with a very rare condition called rhizomelic chondrodysplasia punctata. RCDP is an extremely rare, terminal form of dwarfism and fewer than 100 kids worldwide are affected. Cooper being the only living child in scotland at the moment. There is currently no cure or treatment and kids who make it to 5 years old are considered ”long term survivors”. We were told when he was 6 months old that it was unlikely cooper was going to see the age of 2. He is now 3 years old and the most happiest little boy full of love and still continuing to fight and write his story. This Condition affects the bones and the joints in coopers little body causing them to be stiff and sore and because of this he has developed severe scoliosis and kyphosis which means he might need surgery next year to help him if it continues to get worse. We are raising money by doing the kirkcaldy loony dook on new years day to buy cooper lots of things to keep him as comfortable and happy as he can be, the more comfortable he is the less sore he is. If you would like to take part or want a sponsor sheet give me a message. I will also be donating a percentage of the money raised to the charity rhizokids international who support familys who have children with this condition and to try and find a cure one day.