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Hollie Mahood + Tom Mahood raised £14,035 from 271 supporters
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Closed 15/03/2024
Iʼve raised £14,035 to Rory's Hope
- Norfolk, UK
- Funded on Friday, 15th March 2024
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Story
![](https://images.justgiving.com/image/4e9af945-f37f-4287-8f93-7f244a6eb3bc.jpg?template=CrowdfundingStoryImage)
Welcome to Rory’s Hope, a fund-raising website that aims to support new research into Sudden Infant Death Syndrome (SIDS) and end an unacceptable cycle of heartbreak for thousands of families who unexpectedly lose their babies.
Our son Rory died in the early hours of October 15, 2023. He was four months’ old.
For those few weeks of his precious life, he was a healthy happy baby, developing well and then suddenly, without warning, he was taken from us.
We were catapulted into the world of baby loss, and one where there seemed to be barely any explanations or answers. We found that hard to believe…and we are not prepared to accept that.
We wanted Rory’s life to be important, and his death to be important too.
And we want to try to make sure that SIDS is not just something parents must accept. We believe it is preventable and that there must be an answer out there.
It was while working through my grief as his heartbroken mother that I came across the work of Dr Carmel Harrington in Australia.
Her team at The Children’s Hospital at Westmead in Sydney have identified Butyrylcholinesterase (BChE) as the first biochemical marker that could help detect babies more at risk of SIDS while they are alive.
That is an important breakthrough.
The study by Dr Harrington, who lost her own child to SIDS three decades ago, found BChE levels were significantly lower in babies who subsequently died of SIDS compared to other infant deaths.
This may hold the key to screening for babies vulnerable to SIDS and help tackle the devastating heartbreak faced every year by thousands of parents.
In Rory’s memory, we aim to partner with Dr Harrington – along with a number of other organisations globally – to raise funds to advance her research and develop a test that identifies SIDS susceptible babies.
This is the goal of Rory’s Hope.
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Supporters
271
John Nolan
Feb 4, 2024
Wishing you every success with your research
£50.00
Anna Hardy
Feb 4, 2024
I'm so very sorry for your loss of beautiful Rory. What an amazing thing you are giving back with this fundraising.
£15.00
Lucia
Feb 1, 2024
Saw this on the Water babies group - so sorry for your loss x
£10.00
Anonymous
Feb 1, 2024
Have just seen your story throught water babies sharing. I cannot even begin to imagine what you're living through. A small contribution to help towards life changing research in memory of little Rory
£5.00
Caryn
Feb 1, 2024
My heart goes out to you on the loss of your beautiful Rory. And to create a fundraiser in his memory, really shows your strength x
£10.00
Anonymous
Jan 30, 2024
£10.00
John Rix
Jan 29, 2024
Love to you all and always thinking of you. ❤️
£50.00
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Hollie Mahood + Tom Mahood
Norfolk, UK
Hollie, runs a cleaning business and gym in Norfolk with husband Tom Mahood. Having studied in America, she returned to the UK to launch Spring Clean Commercial Ltd in 2012. Their son Patrick is two and brother to Rory who was born in June 2023 but tragically died in October.