Throughout 2021 I will be raising money for the Fibrous Dysplasia Foundation. Fibrous Dysplasia is a rare bone disease which causes tumour to grow in place of bone. This disease is estimated to occur in 1 out of every 300,000-1,000,000 people, this equates to an estimated 66-221 affected people in the U.K., in honour of this I will walk/run/hike 2,215km over the course of the year, 10km for every person affected in the UK. All money raised through this page will be donated to the Fibrous Dysplasia Foundation.

Fibrous Dysplasia prevents bones maturing into a solid state, leaving it in a weak, misshapen fibrous stage which is prone to fractures. The illness is exceptionally painful and sadly there is no cure.


I first became noticeably ill when I was 13 years old, it took 3 years to find out the cause of my pain and when I was 16 I was diagnosed with Fibrous Dysplasia in my skull. It subsequently took 4 more years until I had any attempt of treatment for the condition because doctors had never heard of the illness and didn’t understand what it was. The past 10 years have been difficult with pain every single day, including chronic migraines.



The charity works to raise awareness and funds research into treatments and cures. With such a rare disease there is little financial support for research and so every single donation helps! 



You can follow my progress on Instagram @chronicallynikki

Thank you so much for your support! Xxx