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Nicola Deeley raised £1,560 from 56 supporters

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Closed 28/02/2022

0%
£1,560
raised of £1,000 target by 56 supporters

    Iʼve raised £1,560 to raise funds for the Fibrous Dysplasia Foundation

    Funded on Monday, 28th February 2022

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    Story

    Throughout 2021 I will be raising money for the Fibrous Dysplasia Foundation. Fibrous Dysplasia is a rare bone disease which causes tumour to grow in place of bone. This disease is estimated to occur in 1 out of every 300,000-1,000,000 people, this equates to an estimated 66-221 affected people in the U.K., in honour of this I will walk/run/hike 2,215km over the course of the year, 10km for every person affected in the UK. All money raised through this page will be donated to the Fibrous Dysplasia Foundation.

    Fibrous Dysplasia prevents bones maturing into a solid state, leaving it in a weak, misshapen fibrous stage which is prone to fractures. The illness is exceptionally painful and sadly there is no cure.

    
I first became noticeably ill when I was 13 years old, it took 3 years to find out the cause of my pain and when I was 16 I was diagnosed with Fibrous Dysplasia in my skull. It subsequently took 4 more years until I had any attempt of treatment for the condition because doctors had never heard of the illness and didn’t understand what it was. The past 10 years have been difficult with pain every single day, including chronic migraines.



    The charity works to raise awareness and funds research into treatments and cures. With such a rare disease there is little financial support for research and so every single donation helps! 



    You can follow my progress on Instagram @chronicallynikki

    Thank you so much for your support! Xxx

     

    Updates

    9

    • Nicola Deeley3 years ago
      Nicola Deeley

      Nicola Deeley

      3 years ago

      Grinch 5K complete 💚 Less than 100km left!!

      Update from the Page owner

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    • Nicola Deeley3 years ago
      Nicola Deeley

      Nicola Deeley

      3 years ago

      Santa Dash completed - on the home stretch now 🎅🏻❤️

      Update from the Page owner

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    • Nicola Deeley3 years ago
      Nicola Deeley

      Nicola Deeley

      3 years ago

      Half Marathon Completed 😄 Only 540km left 💪🏻

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    5 years ago

    Nicola Deeley started crowdfunding

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    Page last updated on: 2/1/2022 11.58

    Supporters

    56

    • Grandma O'Donnell

      Grandma O'Donnell

      Feb 1, 2022

      £30.00

    • Peter Cologne

      Peter Cologne

      Jan 18, 2022

      Amazing achievement and a lot of miles, hope this helps.

      £20.00

    • Julie Brown

      Julie Brown

      Jan 14, 2022

      Well done x

      £10.00

    • Tomi

      Tomi

      Jan 14, 2022

      From your mom’s colleague

      £20.00

    • Jenna James

      Jenna James

      Jan 13, 2022

      £5.00

    • God Bless

      God Bless

      Jan 12, 2022

    • Pablo

      Pablo

      Jan 11, 2022

      £20.00

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    Nicola Deeley

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