On the 11th April our world was turned upside down when Tommy was diagnosed witg stage 4, high risk Neuroblastoma, a very aggressive and rare childhood cancer with a 40%-50% survival rate. Tommys primary tumour was on his adrenal gland with secondary manifestations in his lymph nodes, thorax and spinal cord.

Tommy has so far endured 8 rounds of intensive chemotherapy, stem cell harvest, tumor resection and two stem cell transplants. We then thought we would have some time at home to enjoy some festivities but he unfortunately suffered a rare complication when getting his central line replaced which resulted in having to have a Sternotomy.

He is starting 12 rounds of radiotherapy on the 13th January 2025 followed by 6 months of immunotherapy. Even after completing this intensive course of treatment, there is still a very high risk that Tommy could relapse and his cancer could come back which is frighteningly common with High Risk Neuroblastoma. Should this happen, Tommy’s chances of survival would drop drastically to 5-10%.

Unfortunately we will not know if Tommy’s cancer has went into remission until his end of treatment scans. If he does not manage remission, the treatment options available on the NHS are reduced and often require families to travel to other parts of the UK which they would need to self fund.

There are also a number of clinical trials available outwith the UK that Tommy could access should his cancer not be cured at the end of treatment which we would need to self fund. Some of these treatments can be in excess of £250,000.

The money that we raise will go towards getting Tommy any treatment he needs, improving his quality of life and supporting him and his family during this time.

We want to give Tommy the best chance at beating this awful cancer.

Any money not used to treat and support Tommy during this time, will be gifted to Neuroblastoma UK and other charities that have assisted us during this dreadful time.

Every penny counts.

money raised in this just giving page is specifically linked to Tommys Trekkers via the kiltwalk.

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