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Sarah Bailey raised £650 from 26 supporters
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Closed 16/09/2016
Iʼve raised £650 to get Max to America in October to continue his life-changing therapies!
- Funded on Friday, 16th September 2016
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Story
TEAM MAX are doing Tough Mudder on September 10th!
Join us - 30 nutters will be completing the challenge of their life to help little Max get to America for life-changing therapies.
Max's scoliosis requires surgery before his curve impacts his internal organs and becomes life threatening. It means inserting metal rods along the length of his spine. It's nasty, invasive surgery leaving a scar the full length of his back. He will require repeated surgeries every 3 to 6 months to lengthen the rods through his growth spurt from age 8 until12 and beyond. Ultimately he'll likely require his spine fused solid and be left with life-long disability and pain management.
There's no cure or management in the UK - just observation until surgery is required. I know from my last few years of research that there are routes to a better outcome. Dedicated, multi-disciplinary scoliosis centres addressing physical, neurological and genetic influences. We've had one intensive therapy trip of 3 weeks that reduced his curve by around 50%. With that knowledge, irreversible surgery with life-long problems is simply not an option.
I took Max to America January16th for 3 weeks. Max had immediate results and continues to improve - meaning he doesn't need have the barbaric surgery we do here in the UK. You can follow his story to date on his Facebook page 'Maxipotential'. I invite you to follow. It's amazing, fascinating and lovely to see his progress. Ultimately, I hope it will help a lot more people as I transition Max's fund into a charity to spearhead innovation in the UK.
Updates
10
- 8 years ago
Sarah Bailey
8 years agoSo yesterday was Tough Mudder! A totally EPIC day. There were triumphs, injuries, heroic acts, and comedy moments. 26 of started. 26 of us finished. A grueling 5 hour effort for some. Thank you sooooo much to the Tough Mudder Nutters for joining TEAM MAX on this journey. Please give a donation if you can.
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- 8 years ago
Sarah Bailey
8 years ago1 day to Tough Mudder! Bought these giant chocolate medals to award for; Most Epic Fail, Most Heroic Act, and Overcoming the Biggest Wobble/Fear. Am I allowed to award them to myself - I deserve the choc fix!
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- 8 years ago
Sarah Bailey
8 years ago3 days to Tough Mudder! Last night was our last circuit training. Look how happy everyone is :) I'm petrified and looking forward to it at the same time. Bring on Saturday.
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Sarah Bailey started crowdfunding
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Supporters
26
Nick Russell
Sep 15, 2016
Great work guys
£50.00
Anonymous
Sep 14, 2016
£20.00
Nick and Janette Bianchi
Sep 14, 2016
Many congratulations to Team Max on completing your tough mudder challenge! very impressive! Best wishes NB and Janette xx
£30.00
Simmo
Sep 14, 2016
Well done everyone.
£20.00
J BIRTWISTLE
Sep 14, 2016
Well done guys! 👏
£20.00
Pooles
Sep 13, 2016
Well done Meg :)
£10.00
Scott
Sep 12, 2016
Well done boys
£36.00
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