These 3 gorgeous babies all have the same syndrome, Smith Lemli Opitz Syndrome. A syndrome that not a lot of people are aware of in the United Kingdom, Sadly two of these babies have passed away one of them being my daughter and the other being a friends son who I had the honour of meeting and still remain friends with after my daughter was diagnosed with this condition, without this friends help I would of not understood half of what was happening to my little girl, there is just not enough research into this condition.

Doctors, genetics and other medical staff have little knowledge of SLO making the support, knowledge and research from other parents so helpful and supportive. By people being more aware of this syndrome we are hoping we can get undiagnosed children/families the diagnosis they deserve, giving them the best chance and opportunities in life 💙💗💙

We are hoping to try and raise as much money as we can to help the research into this syndrome and to help more people be aware of it. Any help be it a £1 or £100 will help massively, I myself continue to fund raise every week and raise money doing blind cards, bonus balls and raffles to try and help this cause as much as I Can....No one deserves to lose a child.