Our gorgeous girl Leah - in loving memory.

To raise awareness of 'HLH' and funds in donation to Histio UK.

Histiocytosis UK is dedicated to promoting and funding scientific research into uncovering not only the causes of all histiocytic diseases, which include Langerhans’s Cell Histiocytosis and Haemophagocytic Lymphohistiocytosis, but also ensuring early diagnosis, effective treatment and a cure.

Histio UK also aims to support patients and their families as well as raise public and professional awareness of histiocytic disorders. Its team of Trustees include the UK’s leading paediatric LCH and HLH specialists.

LEAH'S STORY...

Leah started suffering from swollen and painful tonsils shortly after her return from her first 'parent free' holiday to Majorca . Doctors diagnosed her with tonsillitis and sent her away with antibiotics. As a regular sufferer of tonsillitis several times a year, we thought nothing so cruel would follow. After several trips to A&E, she was diagnosed with glandular fever, and this condition would clear on its own. As the days passed, without any improvement, we were advised that she was suffering from liver failure. Leah's condition deteriorated and she was placed in intensive care at hospital and later transferred to the Queen Elizabeth Hospital in Birmingham. Leah was diagnosed with the rare blood disorder 'Hemophagocytic Lymphohistiocytosis' (HLH) - a rare but life-threatening immune condition which causes organ failure as it destroys healthy cells instead of those infected. This explained why she could not fight the infection despite being pumped with drugs in a bid to reverse the damage.

Leah was struggling to eat or swallow and was extremely lethargic during her time at Bridgend hospital. Despite Doctors and Nurses trying their best to treat her, Leah's condition continued to deteriorate. Everything happened so fast and she was soon placed on the intensive care, ventilated and transferred via blue lighted ambulance to Birmingham Hospital.

On Tuesday 7th June 2022, she sadly but peacefully passed away surrounded by her loved ones due to multiple organ failure as a direct result of secondary HLH. We had the opportunity to say our final goodbyes having been told it didn't look like she would make it through the night.

There was nothing more hospital staff could do to save Leah and it was time to let her go.

Our worlds have been shattered.

This page has been created in lieu of flowers to raise awareness of this devastating condition and to raise funds to try and help research this terrible disease in the hope of saving future sufferers and their families from the excruciating pain we have endured.

Leah was the most gorgeous, intelligent, funny, charismatic and caring person you could ever wish to meet and touched the lives of everyone who had the privilege of meeting her. Our lives will never be the same.

Any donation small or big will be much appreciated by both our family and the charity Histio UK.

Thank you x