In 2019 I was diagnosed with Wilsons Disease. Its a genetic condition affecting 1 in 30,000. Wilsons Disease is whereby your body cannot process copper, if untreated it can be fatal.

I presented with neurological symptoms, all my limbs and head shook constantly. Due to this I was unable to do daily tasks like shower, eat and even walk un-aided.

Once I started the medication they told me I was likely to get worse before I got better, I did. I was away in ARI and Woodend for 5 months, I completely lost my ability to walk, talk and eat. I was so lucky with my medical team at the hospitals and my specialist Dr Gillett in London, they were able to source injections from America which got rid of the copper on my brain quicker.

I had daily rehab and speech and language therapy and slowly learned how to walk, eat and speak again.

I came home from hospital and continued to get better. I had a follow up appointment with my specialist this year and he couldn't believe the progress, he told me he has never seen someone make such a good recovery.

I am trying to raise awareness of this condition as they say in smaller gene pools, like Shetland, it might be as few as 1 in 7000 with the condition.

I am also wanting to raise money for the charity and the wards that I was in and received such good care.

I would also like to publicly thank my family and friends that helped me through a horrible time.