pSonny is a pupil at Our Lady of the Rosary school. As most of you are aware Sonny was diagnosed with ALD. This page has been set up for people to donate. The money will be given to the Nelson family to help with anything Sonny or the family needs or to be given to the ALD Life Charity.

Sonny is the only boy in the family with four sisters. As sonny was coming to the end of reception teachers noticed slight changes in his behaviour. Following many hospital appointments, scans and tests, in July 2018 Sonny was diagnosed with a rare genetic condition called Adrenoleukodystrophy (ALD). This affects 1 in 18,000 people, more severely affecting boys and men. This disorder destroys myelin, the protective sheath surrounding the brains neurons - the nerve cells that allow us to think and control our muscles. The childhood form of X-linked ALD is a progressive disease. This leads to a long term coma approximatley two years after symptoms develo. The child can live in the condition for as long as ten years.

There is no cure for Adrenoleukodystrophy once symptoms show. Stem cell transplantation may stop the progression off ALD if done when neurological symptoms first appear, it was too late for Sonny to undergo this treatment.

Symptoms such as loss of slight and slurred speech worsened for Sonny. Following this Sonny began to struggle to walk without aid and it was clear Sonny needed a wheelchair and aid in everyday life. Sonny soon lost his ability to talk so he communicated using his hands. Currently, doctors have confimed that Sonny’s hearing and thoughts are fine but his communication and muscle control have been severely affected.