We did it!
Joshua Barnfather raised £71,284.22 from 1140 supporters
or
Start your own crowdfunding page
Closed 11/02/2020
Iʼve raised £71,284 to help fund life-extending cancer treatment.
- Hull, UK
- Funded on Tuesday, 11th February 2020
Don't have time to donate right now?
Story
Who am I?
I'm Joshua Barnfather. I'm 31 years old and I was born with a rare skin condition, Xeroderma Pigmentosum.
This genetic disorder means my skin has a reduced ability to repair DNA damage, specifically that caused by Ultra Violet light.
For my whole life, I've tried to avoid UV light. I've covered up during daylight hours, stayed indoors wherever possible and adjusted my life and environment to protect my skin and overall health.
Despite the best efforts of me and my family, over the course of my life I have developed several skin cancers that had been successfully treated without life-threatening impact; until now.
In February 2017, I was diagnosed with angiosarcoma, a cancer affecting the inner lining of the blood vessels.
I have had many unsuccessful attempts at face and lung surgery, chemotherapy, trial drugs and lymph node radiotherapy to tackle my cancer. I have also had long hospital stays battling serious infections and severe heart complications. After these experiences, standardised treatments have now been deemed ineffective for my case.
How your money will help
Because of my unique characteristics as a Xeroderma Pigmentosum patient, specialists believe that immunotherapy cancer treatment will be useful for me. However, this is not readily available on the NHS for my case and could cost around £100,000 per year, although there is a lot of uncertainty surrounding this.
Your generous contributions will help to fund this treatment and the associated care. Excess funds will be donated to a cause that encourages the same personalised approach to cancer treatment that is proving beneficial to me.
No matter how small, I am grateful for all contributions.
Thank you for taking the time to read my story.
Updates
17
- 5 years ago
Joshua Barnfather
5 years agoHi all, just wanted to let you know that a research paper on my case has just been published. It's a really interesting read and shows what the funds raised has contributed to achieving. You can find it here: http://molecularcasestudies.cshlp.org/content/5/5/a004408.full.pdf
Share this update to help us raise more
- 5 years ago
Joshua Barnfather
5 years agoHi all, just a quick update to let you know that I've recently got more scan results that show the treatment is still working great. Thanks for the continued support :)
Share this update to help us raise more
- 5 years ago
Joshua Barnfather
5 years agoHi all, check out “War in the Blood” on BBC 2 at 9PM tonight. It’s about trialling immunotherapy cancer treatments on patients that haven’t responded to standard options. From what I’ve read, these patients have completely different cancers to me and the specific immunotherapies being tested are also different to mine. However, I’m wondering if there might be parts of their stories similar to my own... https://www.ucl.ac.uk/news/2019/jul/war-blood-film-about-car-t-cell-therapy
Share this update to help us raise more
Joshua Barnfather started crowdfunding
Leave a message of support
Supporters
1140
Anonymous
Jan 26, 2020
Best of luck Joshua xx
Anonymous
Jan 21, 2020
Anonymous
Dec 7, 2019
Seek Jesus ask him to show you he is real god bless you
£20.00
Amanda Clayton
Dec 2, 2019
Today's kindness challenge: support a charity or cause close to my heart. Cancer has affected my friends and family. I searched just giving and found you nearby. Good luck x
£10.00
Ryehill Building Supplies
Nov 20, 2019
£5.00
Anonymous
Nov 1, 2019
Jill Carr
Oct 20, 2019
Great to hear that you are doing so well Josh. Best wishes, love Jill xx
£100.00
What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Great people make things happen
Do you know anyone in need or maybe want to help a local community cause?
Create you own page and donʼt let that cause go unfunded!
About CrowdfundingAbout the fundraiser
Joshua Barnfather
Hull, UK
I'm Joshua Barnfather and I have a rare skin condition, Xeroderma Pigmentosum. In Feb 2017, this caused me to develop angiosarcoma cancer. Since then, it spread from my face to my lymph nodes, scalp, bones, liver, lungs (and their outer lining) and the outer lining of my heart.