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Jodie Lyons raised £1,240 from 24 supporters
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Closed 21/06/2018
Weʼve raised £1,240 to Help get a diagnosis of chrons/ bowl endometriosis after 2 and a half years of being unwell awaiting months for appointments through the NHS
- Bristol, UK
- Funded on Thursday, 21st June 2018
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Story
I have been undergoing a diagnosis of chrons/bowl endometriosis disease at the age of 28 for two and a half years now and i am still UN-diagnosed . I have suffered years of chronic pain that brings me to tears and leaves me in the loo for hours on end, i loose half a stone each time i am poorly and need to spend the rest of my time whilst out of the toilet re gaining my energy in bed. I have had tests under the nhs which have not lead to a definite diagnosis yet. I am at home in agony and awaiting emergency appointments for months which you can imagine is very upsetting and soul destroying. when i finally get tested the results are never what i want to hear and am told to continue to manage my chrons like symptoms unless i take a dramatic turn for the worst (which in my eyes i am already dramatically unwell) Chrons disease can be very hard to diagnose and can take years to be found. Tests need to keep being repeated until it is found. So two and a half years on i have suffered another flare up again (this happens every 4 months) this flare up is now going strong after 2 weeks no improvement only getting worse. I am in agony i am loosing weight, being sick and i cant eat as it causes to much pain my gums are bleeding and i am loosing blood whilst going to the toilet i am exhausted and have reached the end of my patience but because i have no temperature and my vital signs are ok i am again awaiting emergency apointments . I have had calprotectin samples done every time i have these episodes and they are the only thing that are on my side always coming back at a dangerously raised level which is a definite indication of inflammatory and disease in the intestines. Theses results at this high level are a sure sign of chrons or colitis but even still I have to wait months for a appointment with the nhs whilst i just sit at home in agony. so i am asking for help to be able to get my life back and continue to work because at the moment i am signed of from my job which i love i also have a son who is 9 years old and needs his mummy to be fit and healthy being cared for and worried about by your 9 year old son is not something that i ever imagined would happen to me. I can with your help go for private medical help which will get me seen in a number of days not months and the procedures i need also within a number of days, this will help me finally have my long awaited diagnosis.Waiting months for these tests doesn't help because by the time i am tested i am no longer inflamed.My mum died of bowl cancer at the age of 51 after being told she had PILES by the time they found the cancer it was stage 4 and she sadly passed away. I know i haven't got cancer (i prey) but not every one is a text book illness and people do go UN diagnosed for years before they are to poorly. I do not want this to happen to me or my son. The doctors quote your a mystery but your are very unwell how can that be quoted yet left. I know the NHS are over loaded but i just want my life back and to be out of pain. please help me get the help i need In days. After seeing a consultant at the spire hospital i have now been told i may have bowl endometriosis and need tests asap to diagnose my condition. i can with your help pay to be treated within weeks or i have to wait and continue to be unwell for months and months on end awaiting appointments to come through from the NHS.
Updates
3
- 6 years ago
Jodie Lyons
6 years agoI had my procedure done today thanks to all of you for being supportive and helping me. And at long last I have my diagnosis so i don't think they have ever seen somebody say yes omg yes on the pocudure table but after 2 years of feeling no1 belives u or says o it must be something you have ate take some buscopan 😐. But not finally I have been diagnosed with chrons and ulcerative colitis so I have a long road ahead of me and am going to be on steroids and tablets for the future but I'm diagnosed and that's why I started this. So again thank u
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- 6 years ago
Jodie Lyons
6 years agoThank you again to everybody who is donating words will never be enough to thank you. I have my procedure booked for the 20th June I may finally get the answers I need to get my life back. And a long awaited diagnosis. I am so early there with my target thank you everybody just a little bit more to go xx
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- 6 years ago
Jodie Lyons
6 years agoYesterday i had my first appointment at the spire hospital, i have been booked in already for a colonoscopy at the cost of 1,600 . I have been made to fill i am finally going to get my long awaited diagnosis, my consultant is also leaning towards me having bowl endometriosis and having this colonoscopy will give me a certain diagnosis of one of these. thank you to those who have donated i can not thank you enough.
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Supporters
24
BERN POCOCK
Jun 20, 2018
At last you have the long awaited diagnosis. Hopefully the treatment will get you feeling much better very soon. Lots of Love
£10.00
Carla Smith
Jun 18, 2018
I hope you can get the answers you need!! Good luck xxx
£10.00
Faye O'Hara
Jun 13, 2018
Love you baby duck 🦆 ❤️😘😘
£50.00
Jane Hooper
Jun 10, 2018
Hope you get your diagnosis soon Jodie and you can start a treatment which will help you lead a happier life without feeling ill all the time. Fingers crossed xx
£50.00
Victoria Davies
Jun 9, 2018
Hey lovely, Everything crossed for you😘. Vix and Rich.xx
£50.00
Kirstie Jefferies
Jun 5, 2018
❤
£20.00
Jess Faithfull
Jun 5, 2018
Xx
£20.00
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