My name is Florence and I am ten years old. When I was two my mum took me to the drs as she was worried about my development. After a lot of tests and strange machines they told her that I had this condition called Late Infantile GM1. They told her that I wouldnt live past the age of ten and that I would loose my abilities slowly over time. My mum was really sad but decided she would make every second count and over the course of the last 8 years she has done some crazy things alongside an army of supporters to gift me the best life I could have with my brother Riccardo.

I have been on some amazing adventures and met some wonderful people. My mum has done some crazy things for me to raise money and awareness.

This is a milestone year for me with me turning ten. I am a happy little girl and although I can no longer sit up and sometimes have strange things that happen i still create lots of mishchief and keep my mum on her toes!

Some of my mums amazing friends and family are running / walking the Alderley Edge 10k in May. Mum has said she is pushing me round in my running buggy but just between you and me she needs to get out training 😉🏃‍♀️

If you would like to donate to this page that my mum has set up it would be amazing. Every penny truly helps. My mum uses the money to help fund alternatve treatments such as my lovely lady who is a cranial Osteopath and we also see a lovely homeopath and chiropractor.

It also helps us to go on holiday and create wonderful memories. I love ice cream and going in the sea. I have traveled to many countries in my life including America Northern Ireland, France, Scotland and Wales. I‘ve even been to Disney Land Paris not once but twice! I love adventure and i’m happiest when out and about and taking everything in ❤️

Thank you

Love Florence and my mum Jen ❤️