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Sal Thomas on behalf of Richard Orna

Sal Thomas on behalf of Richard Orna is crowdfunding

0%
£40,724
raised of £250,000 target by 552 supporters

Weʼre raising £250,000 to Help Richard Fight Brain Cancer

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Story

Our fantastic kind thoughtful loving clever brother Rick was diagnosed with a stage IV aggressive brain tumour called a Glioblastoma in November 2022 following a couple weeks of increasingly agonising headaches which left him barely able to function. This type of cancer is very aggressive and comes with a devastating prognosis of 12 to 18 months. To say it was a shock to us all to hear this about our previously fit and healthy 37-year-old Rick is a huge understatement.

Within a week of his diagnosis Rick underwent 8 hours of surgery to remove as much of the tumour as possible from his brain. He and his wonderful wife Maja took on the task of recovery from major brain surgery with grace and determination and non-stop gratitude for the excellent NHS team and the care they all gave him at Southmead Hospital in Bristol.

Since then, Rick has continued to face the challenges of 6 weeks of daily visits to hospital for radiotherapy which caused him to feel increasingly exhausted, slowed down and wiped out. A few weeks later he then began a 6-month course of chemotherapy which left him exhausted and unable to do anything some days apart from rest.

The latest scans have not been as good as we all hoped and have shown that the tumour has grown and is not responding to the standard treatment. Following consultation with a top Consultant Clinical Oncologist, Rick has had further treatments recommended for him which unfortunately aren’t currently available on the NHS.

The main treatment on offer which could be a game changer in treating his cancer is called Immuno-Oncological therapy. Very simply, this therapy combines an oncolytic virus and the patient’s tumour material with dendritic cells to produce a personalised ‘vaccine’. This vaccine, when applied, helps the immune system to target and kill the cancer cells effectively. Intense research over the last few years has shown that this form of therapy can be highly effective in treating otherwise untreatable cancers. This is an advanced and cutting-edge treatment but is also highly complex and individualised, and as such comes with a high price tag.

This is why we are all appealing for your help, no matter how big or small, to raise the funds needed to give Rick this essential treatment and the best possible chance of fighting this horrible disease.

If you have any ideas for fundraising that you would like to take part in, please let us know (contact details below), cake sales etc or any events that you are taking part in and would like to be sponsored for, that would be wonderful; thank you so much.

Thank you for reading and thank you from the bottom of our hearts for any support in fundraising that you can give for Rick, it means so much to us all; we love our brother so much and can’t even begin to think of life without him.

Sal and Henry (Rick’s sister and brother) and the rest of the family.

Richard and his wonderful wife Maja ♥️.

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Updates

6

  • Sal Thomas on behalf of Richard Orna3 months ago
    Sal Thomas on behalf of Richard Orna

    Sal Thomas on behalf of Richard Orna

    3 months ago

    The treatments and lifestyle improvements have yielded extraordinary results; the tumour is going. Scans show a 60% reduction in volume.I am now begging for your help to keep this going. My family, Callisto and MGroup have done so much - from incredible solidarity in braving the shave, runs, swims, football, bake and pizza sales. Incredible. Simon Best has supported me so much from day one. Stephen, Sam; the list goes on - you guys hopefully know what everything you've been doing means to me. Thank you for your support! With love, Richard.

    Update from the Page owner

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  • Sal Thomas on behalf of Richard Orna1 year ago
    Sal Thomas on behalf of Richard Orna

    Sal Thomas on behalf of Richard Orna

    1 year ago

    Here are some updates from Richard: Hi All - This is the third trip to Cologne for my treatment. I am so, so grateful for your amazing support in getting me here. Treatment is now well underway. You can see me here having an intravenous infusion of the oncolytic (cancer-killing) Newcastle Disease Virus and receiving localised hyperthermia treatment. There's much more besides - a lot of medications and supporting treatments. You might notice I needed to take Optune off to have some of these treatments.

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  • Sal Thomas on behalf of Richard Orna1 year ago
    Sal Thomas on behalf of Richard Orna

    Sal Thomas on behalf of Richard Orna

    1 year ago

    I want to say a special massive thank you to everyone who joined me in braving the shave at Callisto Cuts - this show of solidarity, support & bravery really meant the world to me, they helped raise £1610 - wow! The plan is to get the dendritic cell vaccine in Cologne towards the end of the year. Exact timing will be dependent on various factors like my chemo schedule, the vaccine - which teaches my immune system to recognise & attack cancer cells - doesn't work at the same time as chemotherapy, which suppresses the immune system.

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1 year ago

Sal Thomas on behalf of Richard Orna started crowdfunding

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Page last updated on: 7/15/2024 14.58

Supporters

552

  • Phil Mood

    Phil Mood

    Jul 15, 2024

    Good luck Rick. Keep fighting!

    £10.00

  • Lin Kozlowski

    Lin Kozlowski

    Jul 13, 2024

    Happy birthday Ness 🎉Healing hugs to Richard x

    £20.00

  • Adam

    Adam

    Jul 10, 2024

    Wishing you all the best and hope you're doing ok.

  • Anonymous

    Anonymous

    Jul 9, 2024

    £10.00

  • Rose and Dave

    Rose and Dave

    Jun 30, 2024

    £30.00

  • Anon

    Anon

    Jun 29, 2024

  • Agnieszka

    Agnieszka

    May 18, 2024

    £50.00

Sal Thomas on behalf of Richard Orna

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Sal Thomas on behalf of Richard Orna

Sal Thomas on behalf of Richard Orna

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