H Jones is crowdfunding
Iʼm raising £30,000 to support my 13 year old nephew and his family through a diagnosis of Motor Neurone Disease
- Pontypridd
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Story
This is my lovely nephew, Kyle. This time last year Kyle was just like any other healthy 13 year old boy, going to school and playing with friends.
However, Kyle hasn't been as lucky as most teenage boys because just last March he began to experience some neurological issues, and after enduring many hospital visits he has sadly been diagnosed with the horrific Motor Neuron Disease.
This disease is very rapid and is taking away Kyle's mobility at an alarming rate. He's already in the advanced stages and is no longer able to walk, move his left arm and only has 30% mobility in his right arm remaining.
As you can imagine this is a truly heartbreaking time for Kyle and his family, because as most people know there isn't currently a cure for this terrible disease. However a shred of hope has been given as discussions are taking place about Kyle possibly attending another hospital either in the UK or abroad, to undergo a clinical trial - anything that may help is worth a shot!
I am trying to get as much financial support as possible to hopefully relieve some of the financial pressure due to Kyle's parents not being able to work so that they can by his side at this time. Words can't express what they are currently going through. If anyone wishes to donate we would be forever grateful, but if you could please share the hell out of this it would mean the world to us 🙏
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Updates
2
2 months ago
H Jones
2 months agoThe response to Kyle's JustGiving page has been absolutely phenomenal.... we have literally smashed the target not once but TWICE!!! Howewer, as things are so uncertain right now, and we literally have no idea how much we are going to need for Kyle... its been decided that the target will be raised again and anything that is not spent in helping Kyle and supporting his family, will be donated to MND Charities. Once again a HUGE thank you to everyone and God bless you all ❤️
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2 months ago
H Jones
2 months agoUnfortunately there's no further news about Kyle's condition. He's been placed on a waiting list for a clinical trial and the doctors are doing everything they can to get something sorted for him as soon as possible..... time is of the essence! I will update everyone again once I know more, but please keep him in your thoughts and prayers 🙏 Kyle's mum and dad have asked me to thank each and every one of you for your kind donation. Your generosity and kind words have meant so much to them ❣️
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H Jones started crowdfunding
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Supporters
703
Angela Dixon
Apr 1, 2025
God bless
£25.00
Nia
Mar 31, 2025
Keep strong x
£5.00
Claire A
Mar 31, 2025
Devastated for you all. MND is so cruel. Cherish every moment. Sending you lots of love and strength ❤️
£25.00
Rhian and Effi
Mar 31, 2025
Sending love and hope
Anonymous
Mar 31, 2025
£5.00
Louise Cottrell
Mar 31, 2025
My heart aches for you all x
£10.00
Anonymous
Mar 26, 2025
£10.00
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What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.