I've raised £500 to raise awareness of ANE within the medical, research and general communities, for future fundraising events and supporting ANE families

Organised by Graysons Legacy Support Trust
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Children and youth

Story

Ollie T, cousin of Grayson will be trekking the rocky paths to reach the top of Mount Snowdon in honour of his baby cousin. Ollie will be accompanied by his mum Vicky (Grayson's Auntie), Steve (Grayson's Grandad) & Craig (Grayson's Dadda). This will take place for ANE Awareness Day on the 31st July.

Grayson passed away on the 21st March 2020 from Acute Necrotizing Encephalopathy (ANE)- a rare brain disease categorised by brain injury. Grayson was 10 months old and was a fit and healthy baby. He spent his short battle at John Radcliffe hospital, Oxford where neurologists and doctors had never seen a case of ANE before. There is no cure and the best treatment is still under investigation. Please take a look at the ANE International website for more information:

https://aneinternational.org/acute-necrotizing-encephalopathy/

www.graysonslegacysupport.co.uk

Our aim: to grow awareness of this rare disease in our medical community and to help support those families affected by ANE.

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Graysons Legacy Support Trust
Organiser

Donation summary

Total
£5,000.00