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Graysons Legacy Support Trust raised £5,000 from 192 supporters
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Closed 08/08/2020
Iʼve raised £5,000 to raise awareness of ANE within the medical, research and general communities, for future fundraising events and supporting ANE families
- Funded on Saturday, 8th August 2020
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Story
Ollie T, cousin of Grayson will be trekking the rocky paths to reach the top of Mount Snowdon in honour of his baby cousin. Ollie will be accompanied by his mum Vicky (Grayson's Auntie), Steve (Grayson's Grandad) & Craig (Grayson's Dadda). This will take place for ANE Awareness Day on the 31st July.
Grayson passed away on the 21st March 2020 from Acute Necrotizing Encephalopathy (ANE)- a rare brain disease categorised by brain injury. Grayson was 10 months old and was a fit and healthy baby. He spent his short battle at John Radcliffe hospital, Oxford where neurologists and doctors had never seen a case of ANE before. There is no cure and the best treatment is still under investigation. Please take a look at the ANE International website for more information:
https://aneinternational.org/acute-necrotizing-encephalopathy/
www.graysonslegacysupport.co.uk
Our aim: to grow awareness of this rare disease in our medical community and to help support those families affected by ANE.
Updates
3
- 5 years ago
Graysons Legacy Support Trust
5 years agoShare this update to help us raise more
- 5 years ago
Graysons Legacy Support Trust
5 years agoWow........ We have hit our target in Just over 3 hours! Thank you everyone that has donated so far!!!
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- 5 years ago
Graysons Legacy Support Trust
5 years agoWow......thank you so so much, we have already hit the half way mark of our target. We simply cannot thank everyone enough
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Graysons Legacy Support Trust started crowdfunding
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Supporters
192
Anonymous
Aug 7, 2020
£30.00
Rachel hunter
Aug 6, 2020
Thinking of you all xx
Anonymous
Aug 6, 2020
£20.00
Claire Credland
Aug 4, 2020
Faye. I am so so sorry to hear such sad news. I don’t think any words could say how sorry I am or what you feel or are feeling. Your beautiful boy. Love to you hun and Craig x
Anonymous
Aug 4, 2020
Well done Stuart, hopefully some good will come of a tragic situation. Nigel & the Wardour Team
£100.00
Julie
Aug 4, 2020
Grayson"s storey is so incredibly heartbreaking. Happy to help in the fight to get more research underway for the treatment of this condition. X
£20.00
Jacko
Aug 3, 2020
Well done Ollie
£20.00
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