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Sarah Bailey raised £850 from 51 supporters

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Closed 02/03/2018

0%
£850
raised of £5,000 target by 51 supporters

    Weʼve raised £850 to help Esmae-Rose get private treatment for PANDAS/PANS and any other equipment or medication she needs to help her have a childhood.

    Funded on Friday, 2nd March 2018

    Don't have time to donate right now?

    Story

    One day we wished upon a star and Esmae-Rose came true.
    She was perfect. She was funny. She was our family's dream come true.
    Always happy. Always playing. Always the light in everyone's day.
    The only worry she ever had was having to wait for cookies.
    Always fearless, always busy and always excited.
    Beautiful. Intelligent. A social butterfly. Kind. Perfect.
    On the first day of the school holidays (2017) Esmae came out in chicken pox. Everything seemed to go swimmingly and the pox didn't seem to bother her.
    Over the following week we noticed Esmae started raising her shoulders and tipping back her head. Like a tic. It seemed purposeful at first and we thought it was just a funny phase she was going through.
    Over a matter of days Esmae started to become distressed if she couldn't wave or blow kisses from a particular spot in the window.
    She started smelling her hands after touching things and her behaviour became 'naughty' and 'bossy'.
    Esmae became distressed at bedtime if things weren't 'right' or untidy - including her bed covers.
    Esmae became angry, aggressive, repetitive, sad, violent, frustrated, anxious, vacant, impulsive, forgetful, emotional and 'lonely'.
    Esmae's tics worsened. We were terrified.
    We went to DMH and asked them to help us. Esmae was admitted. She had an EEG and a liver function test. They couldn't help us.
    Esmae stopped eating. Even the things she loved. The tics got worse. We watched her deteriorate.
    She had developed horrific OCD symptoms and started begging us to help her.
    Finally, our case was passed to the RVI.
    Esmae-Rose had Strep.
    Esmae-Rose has PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep) / PANS (Pediatric Acute-onset Neuropsychiatric Syndrome)
    Our four year old needs CBT to be able to have a chance at a childhood and it needs to be with a private therapist that specialises in PANDAS/PANS.
    Please help us try and get our daughter back. Please.

    Updates

    2

    • Sarah Bailey6 years ago
      Sarah Bailey

      Sarah Bailey

      6 years ago
      Update from the Page owner

      Share this update to help us raise more

    • Sarah Bailey6 years ago
      Sarah Bailey

      Sarah Bailey

      6 years ago
      Update from the Page owner

      Share this update to help us raise more

    6 years ago

    Sarah Bailey started crowdfunding

    Leave a message of support

    Page last updated on: 3/5/2018 13.49

    Supporters

    51

    • Anonymous

      Anonymous

      Feb 7, 2018

      I watched this video and was such a emotional thing to watch especially as a parent myself,I hope that your little girl gets everything she needs and you get to your target💖

      £5.00

    • Mary Jones

      Mary Jones

      Feb 5, 2018

      Sending u all the love 💖 I can good luck Esmae-Rose. Xxxxxx

      £30.00

    • Leanne Fisk

      Leanne Fisk

      Feb 3, 2018

      £10.00

    • Susan Ward

      Susan Ward

      Dec 19, 2017

      Them snowmen just melted my heart xx

      £10.00

    • Kelly Wreglesworth

      Kelly Wreglesworth

      Dec 16, 2017

      Merry Christmas - hoping that you reach your goal xxx

      £50.00

    • Natasha Hill

      Natasha Hill

      Dec 16, 2017

      Xxx

      £10.00

    • Michelle Dodds

      Michelle Dodds

      Nov 30, 2017

      Raised by some of my lovely Avon customers.. good luck with your fundraising.. keep smiling Esmae-Rose xxx

      £25.00

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    Sarah Bailey

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