WE NEED YOUR HELP!

Thousands of terminally ill women in England, Wales and Northern Ireland are being denied a life extending drug called ENHERTU to treat their advanced breast cancer. Despite petitions, protests, campaigns and even government pressure the secondary breast cancer community is being met with constant rejection from NICE. With Scotland rightly having approved this drug and 25 other countries worldwide we are at a complete loss. Why don’t they value us?

Our only option now is to take legal proceedings to continue the fight for those who need this drug urgently and for the thousands upon thousands who will need it in months and years to come. Can you help us and join the cause?

BACKGROUND

ENHERTU is a prescription drug used to treat certain types of breast cancer. It is approved in the UK on the NHS to treat HER2 POSITIVE breast cancer.

In June 2022 a key trial found that also treating HER2 LOW metastatic breast cancer patients with ENHERTU helped keep their cancer stable for longer and it increased their“overall survival” – they lived longer.

Since then ENHERTU for HER2 LOW patients has become the standard of care in 18 European countries, including Scotland. Recent data has also shown the drug to be even more potent than previously thought, stalling the growth of tumours significantly longer than standard chemotherapy.

Despite this, on 29 July 2024 NICE firmly rejected ENHERTU for use on the NHS in England, Wales and Northern Ireland in HER2 LOW metastatic breast cancer patients. According to BCN around 50% of all breast cancers show low levels of HER2 and the charity estimates that 1,000 people a year stand to miss out on ENHERTU as a direct result of this decision.

This means that NICE are denying thousands of people in England, Wales and Northern Ireland life prolonging treatment and the hope of more time with their loved ones. A drug that is not only widely available across the world (and the number of countries approving it is increasing month on month) but also available across the border in Scotland.

We are currently in discussions with a legal team, which includes the barrister who successfully reversed a decision not to approve another drug, Herceptin, for use by the NHS for early stage breast cancer, in contemplation of issuing proceedings against NICE to force them to reconsider their decision and we are calling to you all for help.

The costs involved with these proceedings are significant. We ask that you please donate as little or as much as you can to support this cause and to help us push NICE to reconsider their decision.

There is a group of breast cancer patients who need access to ENHERTU now. They are out of options and this drug has been proven in clinical trials to prolong life. In addition to this is the hope of thousands of secondary breast cancer patients who rely on life prolonging treatments to give them more time with their loved ones. We all donate to breast cancer research and cancer research but what hope do we have if we are being refused access to groundbreaking drugs.

If you are donating in return for a video from Nadia please follow this link after making your donation and complete the form (highlight the link and click open). £50 for one video or £60 for two videos. Thank you for your support! https://forms.gle/taQq1K4Lah5fd4rw5

BEFORE DONATING PLEASE NOTE

*Funds raised will be used to pay legal fees and disbursements associated with advice and proceedings against NICE in respect of the decision to reject ENHERTU for use on the NHS for HER2 LOW patients. Obtaining legal advice, and donating towards the same, will not guarantee a successful outcome. In particular, it will not guarantee the availability of ENHERTU. It is possible that the advice may be to not continue with the case if NICE are able to show that they have been just and fair in their decision.

* There is a possibility that the impending legal proceedings might encourage the parties involved to renegotiate.

* In the event of an agreement being reached with NICE (meaning that the proceedings are no longer necessary), the claim being discontinued, or in any event, if there are any monies raised that remain in this fund once this matter is resolved, these remaining monies will be donated to secondary breast cancer research.

Finally thank you for showing your support. We can’t do this without you x