We did it!
Lois Herbert raised £1,305.5 from 70 supporters
or
Start your own crowdfunding page
Closed 30/08/2017
Iʼve raised £1,305 to help fund a speech generating eye gaze for an amazing profoundly disabled girl close to our hearts, by doing a 20 mile sponsored walk.
- Winchester, United Kingdom
- Funded on Wednesday, 30th August 2017
Don't have time to donate right now?
Story
6 of us ( Lois, Sammie, Rachael, Matt, Hattie and Scarlet) are doing a 20 mile walk from Hedge End to Winchester and back on Wednesday 26th July. This is to help raise money for an amazing girl to get an eye gaze system.
This is her story ...........
Ella is a beautiful, funny and loving 11 year old, but…
she has Rett Syndrome.
Imagine the symptoms of Autism, Cerebral Palsy, Parkinson’s, Epilepsy and Anxiety Disorder… all in one little girl.
Rett Syndrome is a serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear at about 12-15 months. It is potentially a life shortening condition, but some girls have lived until middle age.
Ella is unable to speak or use her hands. She cannot sit down or stand up on her own or walk far without help. She has breathing problems, epileptic seizures, and scoliosis. However, we believe Ella understands her environment and what is said to her, but crucially has no way to respond. She is locked inside a body that simply doesn’t function properly.
Imagine not being able to ask for a drink when you want one.
Imagine being unable to sit down when you are tired and not being able to ask for help.
Imagine having a headache and not being able to tell anyone.
This is what it is like for Ella every day.
As Ella is unable to use her hands, using an eye controlled speech generating device has the ability to unlock her potential. Many girls with Retts have successfully used eye gaze systems to communicate. Using such a device, Ella would at last be able to tell us some of her thoughts, wishes and needs, which would transform her life.
Here is a great link to further information on Rett Syndrome and the use of the Eye Gaze systems:
http://rettuniversity.org/
https://www.tobiidynavox.com/en-GB/users-conditions/user-conditions/rett-syndrome/
Updates
0
![Lois Herbert](https://images.justgiving.com/image/90e051ad-1fcb-4a44-97b6-2bbf13cb74d3.jpg?template=CrowdfundingOwnerAvatar)
Updates appear here
Lois Herbert started crowdfunding
Leave a message of support
Supporters
70
Siân
Aug 9, 2017
Well done guys ❤️❤️
£10.00
Marie rose
Aug 1, 2017
£20.00
Jane and David
Jul 31, 2017
Well done guys !!
£10.00
Sophie Hanspal
Jul 31, 2017
£10.00
Phil Jones
Jul 31, 2017
Well done Lois and team, love Phil and Deb.x
£20.00
Danielle Baysal
Jul 30, 2017
£10.00
Hayes
Jul 29, 2017
So pleased you all managed the distance!
£70.00
What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Great people make things happen
Do you know anyone in need or maybe want to help a local community cause?
Create you own page and donʼt let that cause go unfunded!
About CrowdfundingAbout the fundraiser
![Lois Herbert](https://images.justgiving.com/image/90e051ad-1fcb-4a44-97b6-2bbf13cb74d3.jpg?template=CrowdfundingOwnerAvatar)