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Darren Sims BEM

Darren Sims BEM is crowdfunding

0%
£56,270
raised of £250,000 target by 417 supporters

Iʼm raising £250,000 to help 5 year old Jack who has stage 4 HR Neuroblastoma

Burnham-on-Sea

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Story

£250,000 fundraising needed
EDITED VERSION OF JACK'S STORY
In the middle of January he suddenly started to complain of leg pain and developed a limp. After several visits to GP and A&E Jack was considered ok but after being still in pain we went straight to Bristol children’s hospital.
We were called in to a private room to speak to a consultant and told during the scan they had found a mass sitting above Jack’s right kidney. They said that Jack was presenting well and so it was probably nothing to worry about.

1st February Jack had an MRI and was the day we were told our son had cancer but over the next 2 weeks he had many more tests including, biopsies, mibg scan, ct scan, bone marrow aspiration and a Hickman line fitted ready to start treatment.

15th February all the results were in, we were called into hospital to hear the official diagnosis, Stage 4 high risk Neuroblastoma. Our lives changed instantly.

Jack is going to have a very long road ahead, intense chemotherapy, surgery to try and remove the primary tumour, high dose chemotherapy, stem cell rescue, radiotherapy and immunotherapy.
If things go well his NHS treatment will last around a year. Jack currently has a 40-50% chance of survival but is at high risk of relapse, if this happens the chance of survival is just 5%.

Fundraising is for maintenance treatment that is not available in the UK. This treatment lowers the possibility of a relapse occurring and gives Jack a better chance of survival if it did return. This involves multiple trips to America over 2-3 years in which we would need to cover flights, insurance, accommodation and medical bills. Jack needs to complete his NHS treatment and have no evidence of disease, then travel very soon after to begin his treatment in the US.

If for some reason we couldn't go to America or didn’t raise enough, funds will go towards Jack’s long term care and we would look to help another child who is fundraising for the same treatment.

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  • Darren Sims BEM12 days ago
    Darren Sims BEM

    Darren Sims BEM

    12 days ago

    🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳 £17,500 of the £250,000 target remaining Between EVERYONE'S awesome fundraising so far, over £232,000 has been raised 👏 Absolutely phenomenal 😍 We have a big charity football match in BRISTOL coming up on Sunday 20th October at Bristol Manor Farm Football & Social Club 11.30am kick off We COULD potentially reach the £250,000 target at this event 🥳🥳🥳 If you can help in any way please contact me Darren Sims BEM (Daz) Daz's Rock 4 Charity Founder 07976 629132 dazdazzle@live.co.uk

    Update from the Page owner

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7 months ago

Darren Sims BEM started crowdfunding

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Page last updated on: 10/20/2024 13.08

Supporters

417

  • Friel Enterprises Limited

    Friel Enterprises Limited

    Oct 20, 2024

    £200.00

  • Anonymous

    Anonymous

    Oct 20, 2024

    £10.00

  • Catherine Willis

    Catherine Willis

    Oct 19, 2024

    Petes skydive. Great job

    £30.00

  • Sarah Clarke

    Sarah Clarke

    Oct 19, 2024

    #peteskydive

    £10.00

  • Anonymous

    Anonymous

    Oct 18, 2024

    £10.00

  • Best wishes 💙 UTG

    Best wishes 💙 UTG

    Oct 15, 2024

    £10.00

  • Darren Sims BEM

    Darren Sims BEM

    Oct 14, 2024

    Daz's Rock 4 Charity supporter

    £14.00

Darren Sims BEM

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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About the fundraiser
Darren Sims BEM

Darren Sims BEM

Burnham-on-Sea

I am a professional musician and fundraiser. Recently received a British Empire Medal in the King's New Year’s honours list for my Daz's Rock 4 Charity fundraising. 2017 - Pride of Britain Fundraiser of the year award (Yorkshire) 2017 - Prime Minister's Points of Light award

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